End Stage Renal Disease (ESRD) Network 13 is not responsible, nor will it be held liable, for any information located as a result of a link presented in the ESRD Network 13 Links page. Other renal sites are simply provided as a network resource for ease in traversing the web, and not to be construed by their inclusion in the links page as being supported by the ESRD Network 13, its affiliations or membership.

American Foundation for Urologic Disease/American Urological Association patients education website with information about wide range of conditions treated by urologists.
American Kidney Fund
American Kidney Fund focuses on extending aid to kidney patients in need.
American Association of Kidney Patients (AAKP)
AAKP offers patient and professional educational information for the renal community. It is a national kidney patient organization directed by kidney patients for kidney patients.
American Nephrology Nurses Association (ANNA)
Official ANNA Web site.
Amrican Society of Nephrology (ASN)
Works to enhance and assist the study and practice of nephrology, to provide a forum for promulgating research, and to meet the professional and continuing education needs of its members.
American Society of Quality (ASQ)
A society of individual and organizational members dedicated to the development and promotion of quality concepts, principles and techniques.
Americam Society of Pediatric Nephrology
Provides editorial review for NIDDK’s new series of fact sheets on kidney disease in children.
American Sociaty of Transplantation
Offers a forum for the exchange of knowledge, scientific information and expertise in the transplantation field.
American Urogynecologic Society
dedicated to research and education in urogynecology and to improved care for women with lower urinary tract disorders.
Association for the Advancement of Medical Instrumentation (AAMI)
AAMI offers up-to-date information on medical instrumentation and technology.
Centers for Disease Control and Prevention (CDC)
Official CDC Web site.
New CDC guidelines for Environmental Infection Control in Health-Care Facilities may be found at:
Centers for Medicare & Medicaid Services (CMS)
A government site that provides information on many issues which includes ESRD care. For information about ESRD link to
OVERVIEW – Medicare Prescription Drug Discount Card and Transitional Assistance Program, December 8, 2003 pdf – 25.4Kb
Open Door Forums – How to Stay Involved (CMS)
The CMS Open Door Forums are a great way to stay on top of the issues at CMS. To learn more about this initiative in its entirely, plese visit:
The Coalition on Donation
Organ and tissue donation information.
Combined Health Information Database (CHID)
Contains informations about books, pamphlets, videos and other educational materials about dealing with a variety of kidney and urologic disease topics.
Dialysis Clinic, Inc.
Dialysis provider that serves patient needs.
Dialysis Facility Compare (DFC)
DFC is a Medicare provided site that aids in locating dialysis units anywhere around the world.
Davita, Inc.
Davita, formerly known as Total Renal Care, is a dialysis provider that services patient needs in the United States.
End Stage Renal Disease (ESRD) Facility Regulations Links
Conditions of Coverage for ESRD Facilities
42 CFR 405.2100-405.2184 Conditions
1881(b)(1) & (c) of the Social Security Act
41CFR 405.2102

Interpretive Guidelines
Appendix H of the SOM (pdf, 3.5MB)
Dialysis and transplantation Web site for the international renal care community.
Emergency Preparedness for Dialysis Facilities
In response to the potential of crisis conditions created by disasters, the Centers for Medicare and Medicaid Services (CMS) has prepared, with the assistance of the Trans Pacific Renal Network, and is providing to dialysis facilities Emergency Preparedness for Dialysis Facilities. This manual has been prepared and organized using the principles of emergency management: Mitigation, Preparedness, Response, and Recovery. Because an emergency stops being one when you and your staff are prepared for it, CMS is asking you as the Facility Administrator to read the manual and use it as a guide to review and/or create emergency plans and procedures for your facility.
Emergency Preparedness for Patients on Dialysis
CMS is committed to providing patients and providers with important information. Just as facilities need to be prepared for disasters, it is also important for ESRD patients to know how to help themselves in emergency situations. As a result a companion piece, Preparing for Emergencies: a Guide for People on Dialysis, was revised and updated and is being distributed to new ESRD patients in the revised Medicare ESRD patient orientation package. This booklet provides some helpful ideas on how patients can help themselves to manage during the first few days of a disaster until more normal conditions can be restored. The patient guide provides information, which is consistent with the enclosed manual Emergency Preparedness for Dialysis Facilities.
Emergency Preparedness Listings
Listing of web sites for emergency prepareness.
FMC Dialysis Services
Fresenius Medical Care North America is a dialysis provider that serves patient needs.
Food and Drug Administration (FDA)
Official FDA Web site.
Forum of ESRD Networks
ESRD Network information.
Gambro Healthcare Laboratory Services
Gambro offers both products and healthcare for renal patients.
Genetics of Kidneys in Diabetes (GoKinD) Study Web site
Juvenile Diabetics Foundation is sponcering the GoKinD Study to increase understanding about the role that genes play in causing kidney disease in people with Type 1 diabetics.
Health Insurance Portability and Accountability Act of 1996 (HIPAA) – – Model compliance form, frequently asked questions, links to other resources. For information on HIPAA satellite broadcasts see at Medicare Learning Network. To sign up for the HIPAA-Regs listserv, the site is:
Home Dialyis Central Website
Designed to serve as a clearinghouse of information for both patients and professionals, Home Dialysis Central aims to raise awareness and use of CAPD, CCPD, conventional home hemodialysis, daily home hemodialysis, and nocturnal home hemodialysis.
Hypertension, Dialysis, and Clinical Nephrology (HDCN)
This Web site serves as an educational resource for professionals about renal disorders and their treatment, hypertension, dialysis, and clinical nephrology topics.
Interstitial Cystitis Association
Offers information and support to patients with IC and their family, educates the medical community about the disease and promotes research to find effective treatments for IC and ultimately a cure.
Kidney Epidemiology and Cost Center, University of Michigan
Kidney Options
An educational resource for professionals and any interested parties of kidney disease.
Life Options Rehabilitation Advisory Council (LORAC)
5 E’s – Education, Encouragement, Exercise, Employment and Evaluation. Patient advocates that serve to improve outcomes for dialysis patients.
Medicaid HIPAA Compliance Concept Model located at
Home of the Dialysis Facility Compare information.
Medicare Help
This website contains online training in the information about Medicare regulations, payment information including filing Part A and Part B claims and front office management skills.
National Guideline Clearinghouseâ„¢ (NGC)
A public resource for evidence-based clinical practice guidelines.
National Institute of Diabetes & Digestive & Kidney Diseases (NIDDK) NIDDK conducts and supports basic and clinical research.
National Kidney & Urologic Diseases Information Clearinghouse (NKUDIC)
National Kidney Foundation
NKF focuses on prevention methods of kidney and urinary diseases, improving the health and well being of people and families affected by these diseases, increasing the availability of all organs for transplantation and assisting in problems.
National Transplant Assistance Fund (NTAF)
NTAF serves all organ and tissue transplant patients, their families and the professional community who treats them. NTAF provides fund-raising expertise for patients raising money for uninsured medically related expenses.
Nephrology News & Issues, Inc. (NN&I) incorporated in 1986 and debuted its first issue in February 1987, filling an unmet need to provide the best professional forum for the exchange of ideas in renal care.
Nephron Information Center
An educational resource that provides links to nephrology and dialysis resources on the Internet.
NephroWorld provides up-date information for the renal community and is formatted like a “daily newspaper.”
Pandemic Flu (Bird Flu).
Oklahoma PIM Plan Final WEB DRAFT.pdf Pandemic Influenza Management Plan.pdfArkansas
None- They reference the CDC websiteCDC


Polycystic Kidney Disease Foundation
Information on polycystic kidney disease, research, support groups and advocacy.
Promoting Excellence in End-of-Life Care http://www.promotingexcellence.orgHardcopy “Recommendations to the Field” in full final report version and in the summary version.
Quality Health Care Web site
Powerful web-based resource for those who are interested in improving health care.
Renal Care Group, Inc.
Renal Care Group, Inc. is a dialysis provider that serves patient needs.
Renal Physicians Association
Represents nephrologists, practice managers, advance practice nurses and physician assistants in their pursuit and delivery of quality renal health care.
An educational resource that provides information on kidney disease for both professionals and any interested parties.
RenalWEB is intended to function as a “daily newspaper” for the renal community.
The Simon Foundation for Continence
Is not-for-profit educational organization dedicated to providing assistance and support to those experiencing urinary incontinence.
Social Security Administration
Medicare benefit information.
Society of Urologic Nurses and associations
professional organization committed to excellence in patient care standards and continuum of quality care, clinical practice and research through education of its members, patients, families and communities.
Standard Information Management System (SIMS)
The SIMS Project is a project that has standardized the way that ESRD Networks collect, enter and report on ESRD data pertaining to dialysis and transplant patients.
Transplant Recipients Internet.Org (TRIO)
Information on donor awareness and advocacy for transplantation.
A nonprofit educational web site serving the world’s transplant community.
United Network for Organ Sharing (UNOS)
This Web site provides transplantation facts and statistics. see also
U.S. National Library of Medicine (NLM)
NLM is a medical library that features the MEDLINE database.
U.S. Renal Data System (USRDS)
A national data system, which collects, analyzes and distributes information about end-stage renal disease (ESRD) in the United States.